We support children and young adults from CIS countries who are facing serious diagnoses and cannot afford the treatment they need. Their families do everything they can, but their own resources and the support available from the healthcare system are often not enough. Trusted local charities, close to families and doctors, help us review each request. Our support is never “just something”, but exactly what is vital according to the approved treatment plan. First of all, we help purchase medicines that are unavailable in the country or far beyond what a family can afford. In situations where a single pack of medicine equals a year’s salary, help becomes truly priceless. All funds from the foundation are paid directly to licensed pharmacies and clinics, never to private individuals. This is how we protect the child, their family, and everyone who entrusts us with their donations. For us, it is about honesty, transparency, and a shared effort — when every contribution becomes a continuation of someone’s story.
Purchase of Medicines
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New medicines to treat oncological and hematological diseases and their complications are appearing all the time. Over the years, many of them become available in the countries where our beneficiaries live — but not all. Quite often, the drug a child needs is simply not registered in their country yet, and they lose a vital part of their therapy because of bureaucracy and borders. Fortunately, there is a procedure that allows such medicines to be purchased abroad for a specific patient. In many cases, these are innovative treatments that are only just entering the global market, or long-known but rare drugs that were never registered locally for administrative or commercial reasons. Sometimes life-saving medicines disappear from the local market altogether and have to be urgently replaced with foreign analogues. Many unregistered medicines are extremely expensive but highly effective — they become the very chance that would not exist otherwise. Drugs like Defitelio, Foscavir, Cidofovir and others are needed on a regular basis. Treatment for a single patient can cost from hundreds to tens of thousands of euros — and this is exactly where your support turns into continued therapy and a real hope of recovery.
Treatment Abroad
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Many advanced treatment methods are already available in Russia and other CIS countries, but there are cases when patients need to go abroad for therapy. For example, CAR T-cell therapy can treat malignant diseases that do not respond to standard methods. This therapy uses the patient’s or donor’s immune cells, modified to destroy cancer cells. It is highly effective and saves lives, but remains limited due to its high cost and the complexity of tailoring it to each individual patient. Since 2018, CAR T-cell therapy has been successfully used in Russia at the Dmitry Rogachev Center to treat acute lymphoblastic leukemia and acute myeloid leukemia in children. However, there are types of leukemia that still cannot be treated with CAR T in Russia or other CIS countries, but can be treated, for example, in China — a global leader in CAR T research. The cost of one course of such treatment is around 100,000 USD.